Self-Help Groups for Speech, Language, and Swallowing Disorders
The following organizations provide information about speech, language, and/or swallowing disorders and some sponsor self-help groups. This list is not all inclusive, nor does inclusion here indicate endorsement by ASHA:
AboutFace U.S.A.
888-486-1209
The Alzheimer’s Association
800-272-3900
312-335-8700
312-335-8882 (TTY)
Amyotrophic Lateral Sclerosis Association
818-880-9007 (V/TTY)
800-782-4747
Aphasia Hope Foundation
913-402-8306
The Arc
817-261-6003
817-277-0553 (TTY)
Autism Society of America
800-3-AUTISM, ext. 150
301-657-0881
The Brain Injury Association
703-236-6000
The Childhood Apraxia of Speech Association
412-767-6589
412-767-0534 (Fax)
E-mail: helpdesk@apraxia-kids.org
Children and Adults with Attention Deficit Disorder (CHADD)
301-306-7070
Disaboom.com
Online community for individuals living with disabilities
Huntingon’s Disease Society of America
800-345-4372 (consumers)
212-242-1968 (professionals)
International Association of Laryngectomees
866-425-3678
209-472-0516
E-mail: ial@larynxlink.com
International Dyslexia Association
800-ABCD-123
410-296-0232
Learning Disabilities Association of America (LDA)
412-341-1515
Little Baby Face Foundation
135 East 74th Street
New York, NY 10021
212-333-5233
National Aphasia Association
800-922-4622 (V/TTY)
National Coalition of Parent Centers
National Easter Seals Society
800-221-6827
312-726-6200
312-726-4258 (TTY)
National Multiple Sclerosis Society
800-344-4867
National Parkinson Disease Foundation
1501 NW 9th Avenue
Miami, FL 33136
800-327-4545 (V/TTY)
National Spasmodic Dysphonia Association, Inc.
800-795-6732
E-mail: NSDA@dysphonia.org
National Stuttering Association
800-937-8888
212-944-4050
212-944-8244 (Fax)
The Selective Mutism Foundation
P.O. Box 450632
Sunrise, FL 33345-0632
Selective Mutism Group-Child Anxiety Network
Speak Easy International Foundation
233 Concord Drive
Paramus, NJ 07652
201-262-0895
Speech Disorder
A United Kingdom-based organization providing resources and information about speech and language disorders
Stuttering Foundation of America
800-992-9392
901-452-7343
901-452-3931 (Fax)
TASH
410-828-8274
410-828-1306 (TTY)
United Cerebral Palsy Association, Inc.
800-872-5827
202-776-0406
WebWhispers Nu-Voice Club
317-257-4246
E-mail: webmaster@webwhispers.org